Resources for people
with rare disease and
Their care partners

Download educational resources
Intro Download

downloadIntroducing CareConnectPSS - A Guide for Patients and Families: Information about CareConnectPSS individualized support and services

Journey Download

downloadTransitioning to Medicare: Information and resources on Medicare plans for people turning 65 or younger people with disabilities or certain ESRD

Direction Download

downloadInsurance 101: Information and resources to navigate through the basics of insurance

Map Download

downloadTraveling with a Chronic Condition: Tips for planning ahead before traveling and avoiding discontinuation of medications or care

DISCOVER OUR UNIQUE PATIENT PROGRAMS
Journey Ahead Brochure

downloadPreparing for the Journey Ahead: Learn about specialized, confidential support to help empower patients aged 16-26 to take charge of their health and make informed healthcare decisions

Perspectives for people with rare disease and their families

downloadPerspectives: Sharing Strategies for Living With Chronic Illness: Perspectives offers various in-person meetings and group discussions where you can learn tips to help you better manage your life with a chronic illness

Looking to connect with a rare disease organization?

Looking to connect with a rare disease organization?

This is not intended to be a comprehensive list of support organizations. Sanofi Genzyme does not review or control the content of non-Sanofi Genzyme websites. These listings do not constitute an endorsement by Sanofi Genzyme of information provided by any other organizations.

Everylife Foundation

Dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy

Global Genes

An organization that connects, empowers, and inspires the
rare disease community

National Organization of Rare Disorders

A patient advocacy organization dedicated to individuals with rare disease and the organizations that serve them

Rare Clinical Disease Research Network

Dedicated to advancing medical research on rare diseases

Genetic Alliance

Engages individuals, families, and communities to transform health through genetics, and provides opportunities to be active participants in their health

Genetic Disease Foundation

Supports research, education, and the prevention of genetic diseases

Patient Access Network Foundation

Dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications

Patient Services Incorporated

Provides financial support and guidance for qualified patients with specific, rare, chronic diseases

Connect with a care partner organization

Looking to connect with a care partner organization?

This is not intended to be a comprehensive list of support organizations. Sanofi Genzyme does not review or control the content of non-Sanofi Genzyme websites. These listings do not constitute an endorsement by Sanofi Genzyme of information provided by any other organizations.

Genetic Disease Foundation

A family care partner organization working to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age

Patient Access Network Foundation

A nonprofit organization created to support, guide, and strengthen families as they care for sick children

Patient Services Incorporated

The first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care for loved ones at home

Talk to your CareConnectPSS team Talk to your CareConnectPSS
team: Call 1-800-745-4447 Option 3 or request more information