Living with Rare

Getting started

Lingo to Learn About LSDs

Common medical terms used with LSDs

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Simplifying the Science

LSDs explained in plain language

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Graphic illustration of a young patient getting an infusion next to his caregiver and doctor

Getting Your ERT Infusion

A step-by-step video

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Preparing for Home Infusion

Getting your space ready

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Changes and places

Traveling with a Chronic Condition

Tips to know before you go

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The Journey Ahead

Transitions of care

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Treatment and Travel

Tips to help plan your trip

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Living well

Coping with a Chronic Condition

A self-care guide for patients

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Coping After a Diagnosis

The importance of wellbeing

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Lifestyle and Relationships

Living with a rare disease

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Living Well with a Chronic Condition

PEACE and wellbeing

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For caregivers

Coping Strategies for Caregivers

A self-care guide

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Forming a Support Circle

A guide for caregiver parents

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Resources for Caregivers

The importance of wellbeing

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The Role of the Caregiver

Voices of the family circle

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Health insurance

Handy Health Insurance Definitions

A glossary of common insurance terms

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Types of Health Insurance Uncovered

A guide to insurance coverage

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Insurance Plans Spelled Out

HMO vs. PPO and more

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MAT-US-2408967-v1.0-11/2024. Last Updated: November 2024