Your dedicated Case Managers and Patient Education Liaisons (PELs) will work closely with you, your family, your care team, and your insurance company to help make sure you get the care you need throughout the rare disease journey
PEL AND CASE MANAGER PROFILES: KRISTINA AND SANDRA
Kristina Shields, MSW, and Sandra Romain, MS, CGC, share a little about who they are and how they can help people like you
HOW CAN YOUR CASE MANAGER HELP?
Kristina will walk you through all of the ways that a Case Manager can help you along the rare disease journey
PERSONALIZED SUPPORT
Is your primary point of contact at Sanofi Genzyme
CARE COORDINATION
Provides care coordination to support you and your healthcare team
INSURANCE COVERAGE
Offers expertise in health insurance and navigating the healthcare system
FINANCIAL ASSISTANCE
Assists with how to handle out-of-pocket costs or if you are without insurance
HOW CAN YOUR PEL HELP?
Sandra will walk you through all of the ways that a PEL can help you along the rare disease journey
DISEASE EDUCATION
Provides in-person disease and treatment education to you, your family, and others (eg, schools and employers)
UNDERSTANDING INHERITANCE
Can help you understand how the disease is passed on in families and complete a medical family tree, if you are interested
LYSOSOMAL STORAGE DISORDERS EXPERTISE
Has background in nursing and/or genetic counseling
LOCAL SUPPORT
Is regionally based
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MAT-US-2009724-v4.0-08/2022. Last Updated August 2022.