Case Managers & Patient Education Liasons (PELs)

Your dedicated Case Managers and Patient Education Liaisons (PELs) will work closely with you, your family, your care team, and your insurance company to help make sure you get the care you need throughout the rare disease journey

Kristina Shields, MSW, and Sandra Romain, MS, CGC, share a little about who they are and how they can help people like you

Kristina will walk you through all of the ways that a Case Manager can help you along the rare disease journey

Is your primary point of contact at Sanofi Genzyme

Provides care coordination to support you and your healthcare team

Offers expertise in health insurance and navigating the healthcare system

Assists with how to handle out-of-pocket costs or if you are without insurance

Sandra will walk you through all of the ways that a PEL can help you along the rare disease journey

Provides in-person disease and treatment education to you, your family, and others (eg, schools and employers)

Can help you understand how the disease is passed on in families and complete a medical family tree, if you are interested

Has background in nursing and/or genetic counseling

Is regionally based

MAT-US-2009724-v4.0-08/2022. Last Updated August 2022.